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Act for Isla

“The idea of repurposing drugs would be life-changing for us. We want relief and we want it now; we can’t wait 10 to 15 years.”

– Isla’s mum, Rachael

For people living with the unbearable pain of EB, time matters

Every day without treatment is a day filled with blistered skin, constant discomfort, and unimaginable suffering.

That’s why we’re urgently investing in dərmanın təkrar istifadəsi – a faster, more affordable way to find relief.

Developing a new drug from scratch can take up to 20 years and cost £1 billion.

Lakin drug repurposing can cost as little as £500,000 and take just two years – offering real hope, much sooner. 

Infographic explaining drug repurposing: costs up to £500k per drug, takes about 3 years, and uses existing NHS-approved drugs.

Because these medicines have already been proven safe, they can skip the earliest stages of testing – getting to people with EB faster.

We need your support to fund the clinical trials that could turn this hope into reality.

Donate today to help fast-track treatments and stop the pain of EB for young people like Isla

DEBRA UK loqosu. Loqoda mavi kəpənək nişanları və təşkilatın adı var. Altında şüar "The Butterfly Skin Charity.
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